Hi Steve, you didn't answer dlydailyhope's question: "Have you had extensive blood work to determine if you have any deficiency or toxicity of vitamins/minerals?" This is one of my questions.
I have been living with peripheral neuropathy for 14 years. At the time my D3 levels were critically low, around 9. I have it tested each year now and my D levels only stay in the normal range if I take about 7,000iu daily.
I developed sensory and autonomic neuropathies 10 years ago after an episode of Guallain Barre Syndrome, and things have been getting progressively worse. I recently learned about how the deficiency or toxicity of vitamins/minerals can exacerbate neuropathy symptoms and, in some cases, cause it. Deficiencies in B1, B6, B12, and D3 are a part of this picture, as well as the toxicity of too much B6.
I recently discovered I am deficient in a form of vitamin E that can cause PN symptoms and have B6 toxicity. I stopped taking B Complex a few years ago when I learned about B6 toxicity, yet my multivitamin contained it. I stopped the multivitamin in mid-December and started on the correct form of vitamin E, and my symptoms are lessening. Any of these nutritional deficiencies or excesses can cause neuropathy issues. There are probably more, but these are what I am familiar with.
Taking medical grade third-party analyzed supplements is important, as well as knowing exactly what you need. Other supplements that help with neuropathy are NAC, 5-HTP, Co-Q10, R-ALA, magnesium glycinate, to name a few.
I am also wondering if you have removed the foods that aggravate nerves from your diet, mainly gluten, dairy, brown rice, sugar, and caffeine. If I consume any of these, my nervous system suffers, and my symptoms flare up.
Hi inmagic, sorry for not answering that part… yes, I’ve had endless blood tests, spinal taps, emg’s, mri’s, ct scans, etc. and everything is in the green.
Then I went to a rheumatologist, who did even more exotic blood & urine tests.
No deficiencies or red flags ever showed.
I’ve tried several supplements (and anti-depressants) for 30 or 60 days, one at a time to have a clean test… no change.
I have not, and probably will not remove those things from my diet (although I have cut down a lot on sugar and bread), because honestly… without SOME pleasure, what’s the point of life?
There’s nothing but exquisite pain, 24/7… I’m gonna have pizza and ice cream with too much hot fudge if I want it.