Connect
Comment receiving replies
"@"bayarea58 "@"jill6063
I wonder if the two of you will be in Denver at the same time.
Any information you would feel comfortable sharing, once you are back in home territory, that would apply to most of us BE patients would be helpful and most appreciated.
The one thing that my lead doctor at NJH said to me that is somewhat interesting, he didn't believe it would be harmful if I didn't nebulize for a period of time, say a week while on a trip. Wonder if that is what other lead doctors at NJH are comfortable with, with BE patients. Overall, in reality, I could do most all other techniques for airway clearance if I didn't take the compressor and cups for nebulizing.
I realize it also is possibly one's own degree of illness, comfort level, philosophy and belief that must also come into play about the nebulizing while away from home on a week long trip....of course that's with the assurances you will make it home to the "sidekicks" , the nebulizer cup and compressor. Well, I guess I just answered that one as I wrote this. Need to take it 'just in case.'
Any feedback on this doctors statement to me from anyone?
Barbara
Replies to ""@"bayarea58 "@"jill6063 I wonder if the two of you will be in Denver at the same..."
Connect
@blm1007blm1007 I go to NJH first week of June, I believe @jill6063 goes late April. I will definitely share about my experience when I get back. If I recall correctly you have mild BE, which may make the difference with regard to a doctor’s comfort level in terms of taking a week off of AC for travel, etc. For those with more extensive BE, or who have frequent exacerbations, I could see a doctor/respiratory therapist making a different recommendation. But AC is a big topic for me to bring to NJH, as my resources here are rudimentary in that regard and not well informed re BE/NTM. Frankly, if it weren’t for this group, I would not be doing AC. So, I am really looking forward to working with a respiratory therapist who can help me improve and refine my AC practices.