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DiscussionBurning mouth syndrome (BMS): Is this an autoimmune disease?
Autoimmune Diseases | Last Active: Feb 15 8:05am | Replies (132)Comment receiving replies
Replies to "Mine journey started with a car wreck and whiplashed my neck. I had a concussion as..."
Thank you for the story and journey Dianne. I appreciate you telling us this involved
trip to find an answer.
I too am going to try for the solution as you did.
Hugs and lots of luck
Robbie
I re read my biopsy report. The description of gastritis hyperplasia biopsy suggests that bile acid reflux may also be involved with the Barrett’s esophagus since I have fatty liver. Sucralfate liquid I take daily protects the stomach and esophagus against bile acid. ppi’s ( Prilosec, Nexium, etc.) do not help bile reflux. That would explain as I have improved with taking the ppi and sucralfate I have tried taking a break from the sucralfate and my burning will increase so I restart the sucralfate. The couple of apples and couple of bananas I now eat daily acts as acid binder for the bile reflux. I am adding more fruits and vegetables into my diet that acts as acid binders into my diet which will also help my fatty liver and high cholesterol. I am still reading and learning. I am feeling so much better! I can eliminate burning mouth for many many hours of the day and have the burning eliminated all night. Any burning I get is mild. I will have to continue taking my ppi ( taking Nexium right now) and sucralfate liquid and that’s perfectly ok with me. Oh I do take vitamin D3 daily and Premier Research Labs Phyto Methylate that contains B vitamins, Folate (5-MTHF) and Choline. The holistic dentist gave me the later for burning mouth. Turns out B vitamins and folate and vitamin D 3 can help with Barrett’s non-progression. Barrett’s is a tough one to have. I will ask my specialist to do another esophagus scope, if insurance will pay for it, to see if I have improved the gastritis with hyperplasia ( a pre-cancer) and my Barrett’s ( a pre-cancer). Barrett’s some say can’t be improved unless you do the new treatments which I don’t know if I am eligible for since I my Barrett’s had no cancer cells.
One correction. Neither my doctor or specialist thought having the esophagus scope would lead to any answers for my burning mouth….both were wrong….both were happy I found an answer after all! I did not think the scope would lead to answers either because I knew I did not have reflux but I had already spent so much money doing other things to try to help myself I just thought I should get the esophagus scope! I never gave up looking for answers…reading article after article about burning mouth too! The burning mouth made my life so hard!