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annie481 avatar

This program helping me recover

Post-COVID Recovery & COVID-19 | Last Active: Feb 13 11:49am | Replies (30)

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I agree and sympathize with you. Pacing is the only thing that has worked for me, and I had to retire. Working and pacing don't seem to work together, so there seems to be no answers for those who must continue working.
Too many therapies are based on the idea that if we just ignore our symptoms and push through our difficulties, we will get better. I have struggled with this for two years and know that is not true. I think the best that anyone can do now is manage the symptoms and that can lead to a better quality of life.
I am feeling better now because I am no longer using more energy than I have. I am no longer pushing myself so hard that I end up in bed for two days. I am engaging in gentle exercise to try to reduce some symptoms. Unfortunately, I still have to spend much of my time in a recliner and am unable to walk much. My quality of life is better, and I hope that it will continue to improve, but it is going to be a long, hard journey.
Many doctors deny that this illness has a physiological component and that leads them to take our symptoms less seriously. We need to hear the truth which is what can we really expect to happen from these therapies and what we cannot. I do share your frustration and hope that some effective therapies might be developed soon.

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Replies to "I agree and sympathize with you. Pacing is the only thing that has worked for me,..."

I think you nailed it. Any person, website, institution or organization that promises a cure is preying on our desperation. NO ONE understands what actually causes the symptoms of Long Covid or ME/CFS or Long Lyme or any of the post-infectious chronic illnesses, and without that knowledge, no one can guarantee that any sort of therapy will make any difference. I agree that pacing is the best way to get through each day without making our bodies worse, and the goal is to maintain a stable baseline, not be cured. Sending you the strength to continue your own journey and find peace and joy where you can.

I’ve had Long Covid a little more than 3 years now. What I’ve learned for myself that pushing my self makes me feel so much worse. I end up in bed or on the couch really sick (sometimes) for days.
This is not an insurance thing. Only do what you can do and no more!!!!
I also found that taking Cyrtex everyday does help a lot with my sinus and chest congestion.