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If you have tapering problems below 5 mg this might explain why.
Polymyalgia Rheumatica (PMR) | Last Active: 15 hours ago | Replies (81)Comment receiving replies
Great explanation re stimulating adrenals to get working again. I’m at 3.5 and having trouble getting lower. I think I should just do it- go to 3 mg and put up with the discomfort to deprive adrenals and make them get busy. I hope they will comply! We’ll see…..
Replies to "Great explanation re stimulating adrenals to get working again. I’m at 3.5 and having trouble getting..."
I had to remain on 3 mg for about 6 months. My 8 a.m. cortisol level was too low. An endocrinologist said it wouldn’t be safe to taper any lower than 3 mg. I needed to wait for my cortisol level to improve and fortunately it did improve.
The only reason I didn’t have a flare was because Actemra kept PMR at bay. I’m off prednisone now but I still need Actemra.
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It is common to have discomfort for a while after dropping a level. Try some Tylenol. Do something to engage and distract you. Hang in there. It will get better !