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New to the Ileostomy world: Any tips?

Ostomy | Last Active: 4 days ago | Replies (16)

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@lmiller116

We do have a Stoma nurse. I may have been the problem 🙁 My role was to measure and cut (his stoma is still changing in size) and I was cutting it too big because I was afraid of making it too tight around the stoma. This was causing leakage. Now I know better and we are temporarily increasing the changing frequency (every 2-3 days) since it is shrinking rapidly.
Good to know about the paste - I didn't know there were other options beyond the powder.

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Replies to "We do have a Stoma nurse. I may have been the problem :( My role was..."

I'm replying because of the importance of the paste and also because I struggled to find answers when I first came home from the hospital. If you apply the paste right it will fill in any gaps around the Stoma. Be sure to cut the hole in the pouch as round as possible or the shape of the Stoma. The best Stoma scissors are Coloplast with rounded blades. Also be sure the Barrier Ring is perfectly lined up with the hole in the pouch. My Stoma size is about 1- 1/16" which is an odd size. I use a 1" X 4" piece of stainless steel pipe and placed 1 1/2" clear packing tape wrapping it around the pipe until it reached 1 1/16" in diameter. I place my barrier ring on the pipe, slide it up the pipe about 1" then stick the pipe in the pouch hole. Then slide the ring down onto the bag which will line it up perfectly with the hole every time. I then apply the paste around the edges of the barrier ring. I haven't had a leak since and my redness cleared up. If you can't come up with a stainless steel pipe let me know what size you need and I will make you one. I don't know the rules about sending addresses but maybe Collen will see this message and respond.