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I got Covid in March 2020 and my life changed. I've battled Long Covid in a multitude of variations since. I wet through hell and somewhat back. I wouldn't wish this on my worst enemy. Fortunately, after 3 1/2 - 4 years, my central nervous system began to re-regulate and normalize but I still endure pain daily. I now have what my doctors call Central Sensitization Syndrome in my torso which means that, something that would typically not cause pain to others causes me pain and things that would cause light pain to others cause me a great deal.
Replies to "I got Covid in March 2020 and my life changed. I've battled Long Covid in a..."
@uget1shot, several members here have discussed central sensitization syndrome and the principles of treating CSS have helped with their long COVID recovery.
You might be interested in this video explanation of CSS with Mayo Clinic's Christopher Sletten, Ph.D., ABPP and Director of the Pain Rehab Center (PRC) at Mayo Clinic's Florida campus.
There are several discussions about CSS that you can find using the search funtion: https://connect.mayoclinic.org/search/?search=Central+Sensitization
Like this one for example:
- Central Sensitization - please share your stories https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/
@uget1shot, have your doctors recommended a treatment approach such as a pain rehab center?
I didn’t know there was a name for it. I know what you mean. I haven’t sought out any answers because I don’t feel anyone takes me serious or is willing to try to figure it out. It takes more energy to try and go to the doctors then just to try and deal with it. My nervous system definitely hasn’t been the same since Covid. I had it at the end of November 2020. That was no ordinary virus. They will NEVER convince me otherwise.
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This isn’t CSS, they try to give it that like it is something in your head. I’m not a conspiracy theorist but I truly think this stuff has impacted our DNA and changed something in our ability to metabolize.. may not be affecting nuclear DNA but definitely seems something mitochondrial DNA. 3 years out from the vax in my case and I am now having all over muscle wasting and atrophy, neuropathy across whole body, losing hair by the hand fulls.