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Cromogranina A

Neuroendocrine Tumors (NETs) | Last Active: Mar 19 12:56pm | Replies (7)

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@phyllisden

Gustavo1975, there are other things that can cause an elevated Chromogranin A (such as the patient having recently taken Prilosec). And there are other tests that can be done - such as a 24 hr HIAA urine. Her Chromogranin A level is actually not that high.
I think you have answered your question when you asked if you should speak with the doctor about possible further testing or treating. Obviously you have concerns and the person to help answer those concerns is the doctor. And if you're not comfortable with what her doctor says, maybe it would be time for a second opinion.
Being educated about a situation gives one power to deal with it. Maybe her doctor will agree to repeat the test, do a different test, etc. In other words, make a plan for close surveillance. You all need more answers.
We can't give you medical advice, but offer some things to think about so you can make better decisions.
Please check in and let us know what happened.

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Replies to "Gustavo1975, there are other things that can cause an elevated Chromogranin A (such as the patient..."

Hello . how are you? thank you very much for responding. My wife has a date for a new analysis for February 1, anyway, this Wednesday we have an appointment with the endocrinology team who detected this problem and also guides us. We'll see what they tell us. Maybe we could ask them if they can order any tests to detect hormones in addition to chromogranin or what they recommend.

And yes, we are analyzing the possibility of getting a second opinion.

My wife does not have any symptoms.

Clearly I will inform you when I have news. All of you here are very helpful to us who are just venturing into this new life.

Thank you very much and health to all.

Sorry for my English