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Osteoarthritis pain as well as neuropathy in my feet.

Chronic Pain | Last Active: Feb 12 10:01pm | Replies (24)

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@terrifimmel

You are the first person I have come across who has peripheral neuropathy as well. Actually my diagnosis is poly peripheral neuropathy. Initially I thought as I imagine you did too that just the feet and hands were the problem. I use Lyrica which works fine. I refuse to use gabapentin as my 2nd husband died from a complication of it. Then both of my arms and both my legs failed leaving me on the floor for 18 hours. When the feeling came back I called for help. This was a whole new animal. I don’t know when it can happen again. Sometimes it’s only one arm or one leg. On January 22nd all four limbs failed. Again. This time the feeling came right back. I have a very green but wonderful DO for a primary care doc who just doesn’t get the seriousness of my situation and is dragging her feet on a neurology consult. Does this happen to anyone else. I feel quite alone in his situation.

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Replies to "You are the first person I have come across who has peripheral neuropathy as well. Actually..."

I'm so sorry to hear about your second husband and everything you've been going through. That sounds incredibly difficult and scary. I haven’t experienced losing feeling in my limbs like that, but I can understand why you're feeling alone in this. I really hope you're able to get that neurology consult soon—waiting when something feels urgent is so frustrating. You're not alone, and I'm wishing you the best.

So sorry you are going through this…don’t give up! 🙏