T3b L1 Gleason 9 Question

They may put you on ADT and Abiraterone or a lutamide. They frequently do that with a Gleason nine.

Radiation to the prostate bed would be happening if your Lymph node was in that area, you definitely want that area radiated, And so will your doctor.

Did they do a PSMA pet test to see if there was cancer anywhere else in your body? Once you get on ADT, it may not be detectable so get it done soon.

A Gleason nine is very aggressive, There really is never a cure, but it can become a chronic disease instead of a fatal disease. Following the drug and treatment recommendations is very important to having a longer life.

You want to get yourself treated by the best, A center of Excellence like Mayo would be a good place to go so that you can get multiple people reviewing your situation. You could go to a Genito Urinary oncologist they specialize in prostate cancer, Unlike a medical oncologist who treat everything.

Getting on hereditary, genetic test is a good idea. You can get one free here

Prostatecancerpromise.org

They will send you a spit tube and in about three weeks a genetic counselor will call you to discuss the results. Don’t check the box to have your doctor involved. They won’t send Anything until they speak to your doctor.

They may put you on ADT and Abiraterone or a lutamide. They frequently do that with a Gleason nine.

Radiation to the prostate bed would be happening if your Lymph node was in that area, you definitely want that area radiated, And so will your doctor.

Did they do a PSMA pet test to see if there was cancer anywhere else in your body? Once you get on ADT, it may not be detectable so get it done soon.

A Gleason nine is very aggressive, There really is never a cure, but it can become a chronic disease instead of a fatal disease. Following the drug and treatment recommendations is very important to having a longer life.

You want to get yourself treated by the best, A center of Excellence like Mayo would be a good place to go so that you can get multiple people reviewing your situation. You could go to a Genito Urinary oncologist they specialize in prostate cancer, Unlike a medical oncologist who treat everything.

Getting on hereditary, genetic test is a good idea. You can get one free here

Prostatecancerpromise.org

They will send you a spit tube and in about three weeks a genetic counselor will call you to discuss the results. Don’t check the box to have your doctor involved. They won’t send Anything until they speak to your doctor.

RP pathology G 9 w/ escaped cells (EPE).
My 1st postop PSA was at 90 days and reported .19
Initiated Salvage Treatment of radiation to pelvic floor and pelvic lymph nodes and ADT. uPSA undetectable following treatment for about 1 yr now.
And historical information foretells re-recurrence for me w/ G 9 and EPE sometime down the road.
I am hopeful that current medical diagnosis and treatment protocols will mean better results going forward.
Significant progress has been made over the past 5 years to convert PCa into a chronic, treatable disease.
And additional treatment progress is anticipated.
Best wishes for successful treatment and a long recovery.