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@keppi

Is anyone dealing with diabetes and carcinoid tumor?
I have diabetes and a carcinoid tumor and my symptoms are fluid buildup in my legs. My face gets flush. I had severe stomach pain at times and I can’t seem to get any satisfactory answers from the oncologist. Does anyone have any suggestions on what might be done with the carcinoid tumor.

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Replies to "Is anyone dealing with diabetes and carcinoid tumor? I have diabetes and a carcinoid tumor and..."

When were you diagnosed? I have no experience with this, but you’ll probably hear from those who have. Sending well wishes your way. I hope they can provide you answers real soon that can help the condition and your symptoms.

Welcome @keppi. I moved your question about carcinoid and diabetes to this exising discussion:
- Anyone dealing with Carcinoid NETs with Diabetes https://connect.mayoclinic.org/discussion/carcinoid-nets-with-diabetes/

I did this so that you can read previous posts and connect with members like @vinnie694 @tomrennie @dbamos1945 @californiazebra and others.

@keppi, did you have diabetes before the diagnosis of carcinoid tumor? What type of diabetes do you have?

I was diagnosed type 2 diabetes 2 years ago when I was diagnosed with carcinoid syndrome.. my primary care doctor prescribed medication, shortly after that I saw a diabetes specialist at Mayo, I did lose a few lbs after staying away from carbs and sugar, she took me off the meds and said to continue with the reduction of carbs and sugar and my A 1C dropped from 7.8 to 6.5.. so I’ve been trying to keep it under 7 with diet and exercise.. As for the hot flashes caused by the carcinoid tumors, I was getting the hot flashes in excess of 25 times a day. Started Lanreotide, after 2 months the flashes continued, Dr switched me to Ocreotide, within a day I wasn’t having any flashes..It’s been 2 years now and it’s still working.. hope things work out for you.