I was diagnosed in November 2024. I haven't had any treatment as of yet because the first two gynecological oncologists were both set on doing total radical vulvectomies without any type of testing. Both made me feel like I was to blame for this. I was told I would never work again, would have to have someone care for me, would be in diapers for the rest of my life and have lymphadema. I had a pimple, which I immediately sought medical care for, and the biopsy removed it all. The 3 doctors I have been to can't even find the area with magnifying glasses. I have no symptoms - no itching, pain or sores. I have 3 very different pathology reports with depths of 2, 7 and 9 - all for the same specimen and mild-moderate, moderate-severe and locally aggressive for diagnosis. Needless to say I am very confused and afraid of what is to come. I have pelvic mri, petscan, colposcopy, additional biopsies scheduled for the 19-20th. I am sure after testing is complete, I will be scheduled for surgery and/or chemo and radiation. Would appreciate any guidance with what is to come.