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Help with Lymphocytic Colitis

Autoimmune Diseases | Last Active: Feb 12 9:57am | Replies (13)

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@kayabbott

Consider asking your GI about Budesonide. I'm 70 and was diagnosed with Collagenous Colitis (CC) 8 years ago. It is so similar to Lymphocytic Colitis that it is considered part of the Microscopic Colitis spectrum. I have kept a food log for 15 years, since my celiac diagnosis, so determined that along with no gluten, I'm sensitive to legumes, dairy, NSAIDs, and some other meds. I have no problem with seeds or fiber (I like psyllium husk), but I do best with a low FODMAP diet. I'd been able to control the CC quite well with diet, exercise, and managing stress until I got covid, long covid, and then Norovirus in 2023. Even then I just had to keep track of where the bathrooms were. Last summer a nephrologist put me on Lisinopril, and it turns out that ACE II, statins, and a number of other meds slap one's colon around, and the runs were off to the races. So...I was put on Budesonide 9 mg/day for 2 months starting on Thanksgiving, and now at 6 mg/day for a month, then 3 mg/day for a month. Budesonide is a designer corticosteroid; the effect is localized to slowing down and healing the colon (thinning the layer of collagen). In me, there were no side effects other than having a bit more energy and not losing weight. The relapse rate after stopping Budesonide is pretty high, so I will need to be diligent in my diet/exercise/stress management. https://www.ccjm.org/content/91/4/215#:~:text=First%2Dline%20therapy%20for%20microscopic,budesonide%20therapy%20can%20be%20stopped.

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Replies to "Consider asking your GI about Budesonide. I'm 70 and was diagnosed with Collagenous Colitis (CC) 8..."

You explain very well. I had same experience. Budesonide Got rid of runs for me 5 years ago. Now it was my 5 year colonoscopy and ugh, i now have the runs. Also, have other auto immune problems. Just can’t get rid of the inflammation now matter what i try. Organic etc.