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Profile picture for allegheny @allegheny

I have had neuropothy for about 8 yrs. Numbness in feet and calves but only to a lesser degree. I have not been able to walk in barefeet for about the same amount of time, feel like I am walking on sharp stones. My balance issue started 3 yrs ago. I was at a party, had 1/2 glass of wine when I felt I needed to put my finger on counter to steady myself, no I was not dizzy. As soon as I put my fingers on counter I was fine. My balance has worsened since then, no cane yet. Well I do use a cane if going to an event with lots of people. I find exercise and shoes Hoka Bondis with Powerstep insoles have been a tremendous help for me. In my opinion,Neurologists just dont know much about neuropathy, they just wing it. Ive been through 4 with absolutely no answers. The last one just last week, prescribed Lanocaine 4% for pain that I get about once every month in my thighs. CVS called and said that the same script is available over the counter and alot cheaper. He never told me to make another appt. I think that he just could not answer my simple questions and did not want me back. Who knows. I find more info on Mayo Connect!!! Thank You All!!

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Replies to "I have had neuropothy for about 8 yrs. Numbness in feet and calves but only to..."

I agree with you. Neurologists I have seen- three of them are clueless. If I mentioned advanced treatment of any kind, they say there is no scientific study to support anything for relief of the numbness I have. Balance is a big issue for me. I go to a physical therapist and that help . I use an ByAcre rolling walker. I am past the use of canes unless someone is there I can grab onto. I ordered the "earth" type of shoes. Waiting for them to arrive.

@allegheny I have had neuropathy that started after cancer treatment 10years ago. It started with the feeling like my socks were all bunched up under my toes & has gotten progressively worse. It has now progressed up to my ankles & balance is a problem but I am also 81 years have stenosis of the spine which I understand can contribute to neuropathy. But last years by evening my feet felt like they were on fire. My doctor put me on Duloxetine & almost immediately they were 98% better. I still have neuropathy, balance isn’t any better but I am much more comfortable at night & sleep has improved. I think everybody’s neuropathy can present differently it’s just finding what works for each of us. Good luck.