← Return to I have recently been diagnosed with my third neuroendocrine tumor

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@vinnie694

I was diagnosed with NET’s a little over 2 years ago . Very fortunate to have Mayo Jacksonville 1/2 hour away from our home. After careful review of all my scans, I met with their NET team.. In was informed at that time not to think of this as regular cancer cause if it was , with the amount of tumors on my liver it would be a whole different story.. I really didn’t have any symptoms and was not suffering from any loss of body functions.. His approach was not surgical, and he didn’t recommend Chemotherapy.. It was well explained. As treatable, not curable. I could go into my plan , but everyone has a different medical situation. I would always question what he was doing to what I’ve read here and other sources.. He always knew what I was talking about and was able to explain why or why not in my case.. I believed his advise was solely based on experience, and I felt very comfortable with his plan. he always welcomed my questions, which made me even more comfortable with this team.. Phone calls are returned and on my patient portal I always receive a quick response to all my questions. I hope you get all the answers you deserve, Best wishes on your quest for a treatment plan..

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Replies to "I was diagnosed with NET’s a little over 2 years ago . Very fortunate to have..."

Thank you for your reply and sharing. We hope that you continue to have success in your treatment plan. We are contemplating going to the Mayo Clinic at some point in the future if another net is diagnosed. As of now, we are just trying to get educated on this disease And how to best proceed. Please take care and we will keep you in our prayers.