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Post notes - scary
My urologist office sent me the post notes from my Nov. 11 surgery so I can share info with my primary care. Maybe the scariest thing I've read. Among the things he found were presence of cancer in the blood vessels or lymphatic channels, spread along the nerves outside the prostate and invasive carcinoma present at the margin, left bladder neck. After my PET scan in August showed no spread. It explains why I went from Gleason 4+3 to Gleason 9. I'll talk to the urologist in 2 weeks after my first post-op PSA, but until then I'm telling myself that if he saw those things he addressed them. Anyone have a similar experience with a happy ending?
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It's still early days.
Wait till the first PSA
Also your pathology report should have useful info. Like whether there was lymph node
Involvement. Google interpreting a pathology report.
That your PSMA PET showed no detectable spread is encouraging. That you apparently have so called positive margins suggest some may have gotten out but may still be micrometasis in the nearby prostate bed which can be handled w salvage radiotherapy. Talk to your Doc
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3 Reactions@anosmic1
You mentioned after your surgery so I assume you had prostate removed.
What I read from your post is that the urologist surgeon found cancer outside your prostate is that correct?
If so the removal of your prostate only addresses the cancer inside the protate not the cancer that has developed outside the prostate. Having a PSA test after your surgeon has found cancer present outside your prostate is waiting for what. If me I would be asking the urologist what is next in treatment of cancer found outside of prostate.
I had radiation not surgery so can't comment a lot about surgery. But when they find cancer has spread outside of prostate it is another whole level of treatments. I have read these days that there are great treatments available for cancer that has spread outside prostate.
I did not have hormone treatments as mine was after Decipher tested as low risk. Has your urologist mentioned hormone treatments? They are usually done to hinder the growth on prostate cancer to enhance what ever treatment you decide on.
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4 ReactionsI agree with you, JC , that planning should be in the works now for salvage radiation with/without ADT.
No matter what the PSA says there simply have to be cells which have gotten out due to positive margins, etc.
It’s 3 months post-op so it’s OK to initiate radiation therapy (or start ADT if indicated).
Anosmic, better to do it now IMO than anxiously watch your PSA numbers rise over the coming months.
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