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Anyone out there diagnosed with Pudendal Neuralgia?
Chronic Pain | Last Active: Mar 20 11:18am | Replies (243)Comment receiving replies
You should be scared. Having PN is a nightmare. I was diagnosed with PN last year by my pain management Dr after PN nerve blocks, which only relieved my pain for a day. I had surgery two years ago to place a sling under my urethra to help with incontinence. The GYN damaged the Pudendal nerve on both sides. Nobody has heard of PN. Not a Urogyn, surgeon, gynecologist, urologist, nobody helped me. Just a bunch of stupid tests. Right now I get a ganglion impar block every month. It helps 50%. I wish somebody could tell me what kind of Dr could help me. Knowing I will live with this for the rest of my life is too much. I try to stay positive but with this intense pain I realize how weak my mental health is. I've been in 2 mental hospitals because of suicidal thoughts because of the pain.
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I also have multiple symptoms as you.
Had a bladder sling done and had no relief from leaking, just some complications like not being able to pee afterwards,and having to undergo a loosening of the sling.
I also cannot feel the urge to go, and basically am stuck having to wear a damn pad all the time!
My nerves are shot, have no feeling in my feet and have trouble walking.
My balance is gone, and have to use a walker because I fall easily, and I can’t walk around places because I get tired easily.
I know how you feel, it’s a real struggle.
There are days when I just want to give up, my quality of life sucks.