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@ray666

Hi, Ed. When you say, "I think we are anxious to try what we think will work … " I hear the same things on the Sepsis Alliance forum. For many, it's beyond anxiety. Its desperation. Panic. I remember my reaction when I first heard my neurologist use that word "incurable." I remember the drive home: splattering rain, bumper-to-bumper traffic, and my mind unable to stop massaging that word "incurable" – maybe I did hear the doctor, right? … maybe he meant "difficult" to cure? … maybe he misread my EMG? … maybe … maybe … maybe. It wasn't until I learned to accept "incurable" for what the word meant that I started to live again. (Life. Tough, some days, to live with it, but I damn sure don't want to live without it.) –Ray

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Replies to "Hi, Ed. When you say, "I think we are anxious to try what we think will..."

Ray - I agree with your comments. Also, the fact that doctors need to tell a patient that he or she has PN with no cure is as difficult on the doctor as it is for the patient to hear it. When I went to Mayo in MN, the doctor was obviously upset to hand me the news that my PN had no cure. With my wife working in the medical community at our local hospital for 25 years, on the way home from Mayo she reminded me that there are things way worse out there that have no cure. I always keep that in mind. Ed