Connect
← Return to Tymlos side effects
Discussion
Comment receiving replies
@strongerbones, what an absolutely horrible experience! I am so sorry you are going through this.
I also received a letter a few days after receiving my first pen. That was over a week ago and I have still not taken an injection because I was hoping my endocrinologist would order a blood calcium test first since my blood calcium is 10.1 and that is considered on the high side for a 73 year old. He didn't. Instead he pretty much berated me for my indecision about taking the Tymlos and said I have been reading false information.
I have been going back and forth with my Part D Specialty drug pharmacy too, and they keep telling me different stories about whether or not I have coverage. It has been very frustrating indeed.
I am going to try to take the first injection tonight, but I am going to start at 2 units, not 8. I don't understand why doctors don't understand that smaller people with less weight should be able to take the same dosage as people who are larger.
I wish you the best. Please let us know how you are faring!
Replies to "@strongerbones, what an absolutely horrible experience! I am so sorry you are going through this. I..."
Connect
I’m first led an appeal about the TYMLOS with my insurance provider but I don’t want to go through being sick again. My endocrinologist prescribed Forteo as an alternative which is also a bone builder
And a daily injectable. She suggested I take a two week mental break and the start Forteo. I must have spend about 20 hours in phone calls,(including waiting I a ‘queu’ or filling out forms. I also filed a grievance and a complaint. I do that for me but for also all the people who are older, don’t have an advocate or limited English nor who other ways marginalized.
I read an article that only 1% of patients who are denied a medication appeal. I also wrote an article to the Seattle Tomes. It probably won’t get published but it was cathartic for me. I made an analogy to buying a winter jacket, recommended by my boss, for my outdoor job but the jacket had no price tag and I needed prior approval from the weatherman.
I will keep everyone informed on how I do with Forteo.