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This program helping me recover
Post-COVID Recovery & COVID-19 | Last Active: Feb 13 11:49am | Replies (30)Comment receiving replies
This thread has been going for awhile. It seems to me that the various therapies are really not that helpful. It gives us the illusion that we are at least doing something to get well.
Has anyone really recovered, or are you just resigned to your new normal? Or perhaps just over time your body has healed on some symptoms?
I speak as one who has suffered for three years while going to a long Covid clinic and all sorts of other doctors and therapists. I’ve tried just about everything with no significant improvement. Each new thing I try gives me hope, and then let’s me down.
I operate at maybe 20% of my old normal. It sucks and I am so sick of it.
Replies to "This thread has been going for awhile. It seems to me that the various therapies are..."
I agree and sympathize with you. Pacing is the only thing that has worked for me, and I had to retire. Working and pacing don't seem to work together, so there seems to be no answers for those who must continue working.
Too many therapies are based on the idea that if we just ignore our symptoms and push through our difficulties, we will get better. I have struggled with this for two years and know that is not true. I think the best that anyone can do now is manage the symptoms and that can lead to a better quality of life.
I am feeling better now because I am no longer using more energy than I have. I am no longer pushing myself so hard that I end up in bed for two days. I am engaging in gentle exercise to try to reduce some symptoms. Unfortunately, I still have to spend much of my time in a recliner and am unable to walk much. My quality of life is better, and I hope that it will continue to improve, but it is going to be a long, hard journey.
Many doctors deny that this illness has a physiological component and that leads them to take our symptoms less seriously. We need to hear the truth which is what can we really expect to happen from these therapies and what we cannot. I do share your frustration and hope that some effective therapies might be developed soon.
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@dloos thanks for your input which is helpful. I’m two years in, currently a patient at NWMH LC clinic, SRAL for cognitive rehab, etc. and very little if any improvement. I think FOMO drives my efforts to do or try the next “cure”… and now that LC “treatment” is becoming big business, there’s a profit motive at work. However, reliable research is still new and results haven’r yet translated to effective treatments as far as I can tell. Here’s hoping for better news … soon!