We 'Zebras' will likely have different reactions to treatments. The Oncologist (specializing in NET's) is the best person (or, in my case, team) to analyze the situation.
I have been on Lanreotide for one and a half years and just recently upped the dose to 180 mg. every 4 weeks. I started at 120 mg. every 4 weeks and then adjusted to 120 mg. every 3 weeks and now the increase of the Lanreotide dosage.
I had introduced 'Lenvima ' 3 months ago, so now taking the two treatments. After 2 bouts of PRRT (which caused liver tumors to grow more) and Histotripsy, which partially shrunk some tumors (available in the U.S., not Canada (and very costly), I am finally somewhat stable. BTW, there is a lot of information online about the treatments and what to expect.
Much of the time, we are test subjects for ourselves, so this is a life project.
My primary was in the sm. bowel and metastasized to my liver, hence Stage 4.
Wishing the best.