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Path to 0mg and acceptable discomfort?
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (9)Comment receiving replies
I would keep up the exercise and anything that makes you feel better. Spend more time trying to keep active. It is possible to get off the prednisone and sort of burn out the PMR. You will continue to have some background noise as you go to zero. It seems our HPA axis has a bit of adrenal fatigue. Most everyone says they wonder if its just age related. But it will get better. Its not the same noise as when PMR was active. It took about 6 months for me to feel a little normal and now 2 years later I still have the background noise. I will be 73 in a couple of months. I took this transition period to have everything checked. Hormones etc. I also found the losartan for prednisone induced blood pressure was causing some fatigue. Many find that the PMR / prednisone has caused other issues to pop up. So dont dismiss anything concerning. We are to young to check out early.
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Thanks for the good advice. That gives me more confidence to do what I've been doing, which has been to ride things out until they get better, for the most part. Fortunately that has worked , as far as I can tell. The main issue that has popped up for me has been high ocular pressure. I won't know for sure if it's glaucoma till I get off the prednisone, and pause the eye drops to see what happens. I also have some early stage cataracts but the doctor thinks it's age related. I doubt that my new PCP will order any tests till my yearly exam in May, unless there are some symptoms that require them.