← Return to Your tips on how to live with Lymphocytic Colitis/Collagenous Colitis

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Profile picture for riv2ga @riv2ga

Hi mthom1217! I like you thought I was doing everything right in taking care of myself and eating healthy. But now the opposite is true. I was diagnosed in 2022 with lymphocytic colitis after a bout of dumping syndrome for 7 weeks. Talk about not wanting to think your spirit has already left your body, whew! I was exhausted from not being able to eat solid foods, having nurses come in to provide IV fluids, and worrying about my poor husband. During this episode is when I was diagnosed. I have to follow a strict diet of FODMAP AND gluten free. Never mind that much of these items cancel each other out which reduces what is really available. My heart goes out to you during this difficult adjustment time. I have waited 11 months to see a gastrointestinal doctor at UVA who specializes in LC and I am finally going to see him this coming Friday. Hopefully, I will be able to share some insight and his guidance in this very rare diagnosis with you. Will be keeping you in my prayers as you take this journey and pray for relief and renewed health.

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Replies to "Hi mthom1217! I like you thought I was doing everything right in taking care of myself..."

Oh thank you! I didn't realize there were specialists. I'm eager to find out how your visit goes. I'm going to back to my FODMAP book and clearing out the fridge and pantry. I just need to focus on my new norm.