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Path to 0mg and acceptable discomfort?
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (9)Comment receiving replies
Thanks DadCue. You’ve been through a lot more than most. You’ve certainly helped to give me some perspective on things. I came down with PMR at 69, probably around December 2023, but I was too determined to fix it myself with acupuncture, tai chi, exercise, etc. so didn’t get a diagnosis till last April. I was a freelance artist for at least 40 years. But it felt like I was murdering myself, sitting at the computer, and ended up stopping work a couple of months short of my 70th birthday. It seemed more important to focus on my health. Anyway, the tai chi, exercise, and a better acupuncturist have all come in handy to support my treatment.
I’m glad you now have the option to get your surgery when you need it.
Replies to "Thanks DadCue. You’ve been through a lot more than most. You’ve certainly helped to give me..."
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I would keep up the exercise and anything that makes you feel better. Spend more time trying to keep active. It is possible to get off the prednisone and sort of burn out the PMR. You will continue to have some background noise as you go to zero. It seems our HPA axis has a bit of adrenal fatigue. Most everyone says they wonder if its just age related. But it will get better. Its not the same noise as when PMR was active. It took about 6 months for me to feel a little normal and now 2 years later I still have the background noise. I will be 73 in a couple of months. I took this transition period to have everything checked. Hormones etc. I also found the losartan for prednisone induced blood pressure was causing some fatigue. Many find that the PMR / prednisone has caused other issues to pop up. So dont dismiss anything concerning. We are to young to check out early.