Connect
← Return to Large-fiber neuropathy: Your prescrition meds & supplements?
Discussion
Large-fiber neuropathy: Your prescrition meds & supplements?
Neuropathy | Last Active: Feb 10 1:49pm | Replies (18)Comment receiving replies
My diagnosis was in 2022, and I, too, was told no meds will help with my PN. Our med diet is also a near match. I take a 25 mg Losartan for hypertension, an 80 mg Atorvastatin to prevent stroke (first prescribed when I was hospitalized with sepsis), a 0.4 mg Tamsulosin for urinary incontinence, and drops of Latanoprost to prevent glaucoma. I know you know that I also have been on a daily regimen of EB-N5, prescribed by my neurologist, to help (in any way it can) with any progression of my PN. Like you, I'm hard-pressed to say if the EB-N5 is helping with my PN. However, I can report that my PN has not progressed, or if it has, the progression has been so incremental as to be of little consequence. Among supplements, I take 125 mcg of D-3, 200 mg of Magnesium Glycinate, 1400 mg of fish oil, and a multi-vitamin tab. I've been advised not to take any more B-12 because my labs show my B-12 is skyhigh. –Ray
Replies to "My diagnosis was in 2022, and I, too, was told no meds will help with my..."
Ray - I do take 50 mg of Losartan and several other meds you take which I didn't mention in my prior post. I do scratch my head at times and wonder if any of these meds taken over many years may have caused the onset of PN and what supplements may or may not really help with our symptoms.
Connect
Hi, Ray!
I, too, was diagnosed with long-fiber PN (additional description included "distal symmetric demyelinating sensorimotor") in late 2021 and I can assure you, that for me, there has been plenty of pain. My pain doctor, an anesthesiologist, has been prescribing 50mg of Tramadol four times a day (but 3 times is almost always enough) and 100 mg of Pregabalin, also three times a day since early 2022. Balance, gait, and numbness aside, this combination leaves me feeling as close to normal as possible. Since the late 1990s I have been taking, through my PCP: Atenolol, Hydrochlorothiazide, and Lisinopril for high blood pressure, Levothyroxine for low thyroid, Lisinopril for high cholesterol, and Atenolol for sleep. My lab tests at the semi-annual checkups have all been in normal range for as long as I can remember - at least 15 years. Supplements are many, including Vitamins C, D, and B12, Magnesium, Calcium, Pycnogenol, CoQ10, Cod Liver Oil capsules, "Green Food", a probiotic, and low-dose aspirin. I'd really like to pare down all the pills but I've had no health problems for so long, I figure the combination must be working for me, and neuropathy is more than enough to deal with. It does not seem to be progressing at this point.
I hope you are well, and that your sepsis is a thing of the past!
Barb