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Positive For High-Grade Urothelial Carcinoma on Urine Test
Bladder Cancer | Last Active: Mar 1 1:03pm | Replies (16)Comment receiving replies
Rose,
I hope your husband’s TURBT went well and that he is beyond the discomfort of a catheter. I have had two sessions of Gemcitabine and Docetaxel. The first session was difficult for a myriad of reasons unrelated to the chemicals used. I had my second session yesterday. It was better. I am conferring with a consulting oncologist. I hope it will give me assistance in determining whether I have the right treatment plan. The literature suggests there is a high (65+%) chance of recurrence. I am looking beyond the chemo I am receiving to figure out if I have a physician with the right plan. My treating physician is peremptory; he is not one for answering questions. In fact, after the second TURBT, he called, said he had ordered chemo and that I would get a call from the infusion center. He didn’t tell me if the chemo was systemic or intravesical. He didn’t tell me what agents would be used, I emailed him through MyChart. His PA responded. It’s frustrating. But I have a plan. I have great support of family and friends. I get a lot of prayers. My wife is a saint. 🙏
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@delavan yes, my husband is all done with the TURBT and has that Foley Catheter out. He hated that! Dwight is also on Gemcitabine….but with Cisplatin. He has one week with Gem/Cis . The next week only Gem for 1/2 hour. 3rd week he has off. So, he’ll be hooked up 8x. Praying for no bad side effects. I know God will take him through this….just like he is doing for you.
After 8 treatments…he’ll get a CT Scan…then a complete RC. That’s the Plan. Yes, it seems as though you have questions for your doctor. That’s smart contacting him on MY CHART. I brought my notebook in his office with some questions for him….wrote everything down he said. Dwight will get a port put in and some Emla Cream to put on 1 hour before so the IV doesn’t hurt going in.
His first treatment is Feb 18th. I’ll stay with him and bring my knitting. First, Blood Draw…then meet with doc or nurse, then treatment. The nurse showed us a refrigerator/freezer filled with all sorts of goodies we never have at home. Also, my favorite =coffee station. I’m glad you have your wife by your side…you’ll get better faster! Prayer is so powerful…happy to know you have supportive family and friends. God bless you and I’ll be praying for you…for a complete cancer free life xx