Spinal fusion L3 into sacrum (2014) with L3 herniated disc now

Posted by ptpatty @ptpatty, Feb 1 10:57am

I had a spinal fusion (L3 into sacrum) in 2014. Screws in L3 were migrating out within two years, according to x-rays. I have had pain that required opioids, but have been able to function pretty well over the years. Approximately two years ago, the pain increased, and I had a spinal cord, stimulator implanted, which relieved much of the sciatica. Recently, I had a significant increase in pain and an MRI reviewed a herniated disc at L3. Has anyone else experienced anything similar? I am pretty much bedbound right now until I’m able to meet with my pain doctor. I am afraid I may have to have a revision and don’t know if I would be able to get through that at 73 years old. I’m a retired physical therapist, so trying to do anything and everything possible to maintain my mobility and strength.

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@gently

Jeffifer, if Mayo decides against seeing a patient or the patient decides against being seen at Mayo, do they receive the imaging review?

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@gently I think they just receive a letter, but not a diagnosis of the problems seen on imaging. They do return imaging. I don't know if you need to request that or not. This is something someone else told me second hand. I was accepted at Mayo when I applied several years ago, so I haven't received a denial letter.

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@ptpatty

Thank you! Yes, it is the L3-L4disc. It’s the same one that herniated over 10 years ago. They removed part of the disc it seems, but not all of it. The screws were left in because the surgeon said he would have to take all of the hardware out and do a revision. He said I might never have any problems with it so it would probably be best not to do anything. They are still migrating, and have been noted on previous x-rays through the years. I wish it was L2 L3 and they could do the microdiscectomy! I don’t know if they would even try that or if there might be another option other than a revision. Trying not to lose hope but right now I can barely walk to the bathroom and back. I stand in a significant side-bent position to be able to walk and then have to get right back to bed. I have no idea how I will be able to get down the stairs, into a car and ride to the doctors office on Wednesday.

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I feel your pain. My discs L2-3, L 3-4 disintegrated and there was traumatic disc extrusion near the spinal cord at L 1-2. Over many years the vertebrae naturally fused so I have had to get 4 steroid injections for pain. Currently space of epidural canal is narrowed and another epidural is not recommended. It has been years of acute flare up events and chronic pain. I take a minimum of Hydromorphone. The bed hardness (I slept on the floor since 2008!) was a big factor in getting sleep. But now the best sleeping can occur partially sitting up. The Pain Clinic Doctor here in Vancouver is going to try a nerve ablation procedure. I talked to Occupational Therapist for the first time yesterday and she stressed mind-body connection for relaxation. I splurged last year and bought a new mobility scooter so my husband and I can get out locally. Car rides are difficult to handle. Relaxation is something I’ve done for years and do have lots to have my mind stimulated. It is torture though and frustrating with limited mobility, but you need to listen to your pain and get bed rest with rotation of ice packs and regular med schedule whenever needed. No guilt! My question is: anyone had success with lumbar nerve ablation?

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@msmcecelia

I feel your pain. My discs L2-3, L 3-4 disintegrated and there was traumatic disc extrusion near the spinal cord at L 1-2. Over many years the vertebrae naturally fused so I have had to get 4 steroid injections for pain. Currently space of epidural canal is narrowed and another epidural is not recommended. It has been years of acute flare up events and chronic pain. I take a minimum of Hydromorphone. The bed hardness (I slept on the floor since 2008!) was a big factor in getting sleep. But now the best sleeping can occur partially sitting up. The Pain Clinic Doctor here in Vancouver is going to try a nerve ablation procedure. I talked to Occupational Therapist for the first time yesterday and she stressed mind-body connection for relaxation. I splurged last year and bought a new mobility scooter so my husband and I can get out locally. Car rides are difficult to handle. Relaxation is something I’ve done for years and do have lots to have my mind stimulated. It is torture though and frustrating with limited mobility, but you need to listen to your pain and get bed rest with rotation of ice packs and regular med schedule whenever needed. No guilt! My question is: anyone had success with lumbar nerve ablation?

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Thank you! I’m consistent with meds and since I’m on my back most of the time, I only ice after I stand or walk for about 5 minutes.

I’ve never had a nerve ablation so I’m sorry I can’t help with any input on that.

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@ptpatty As a fellow spine fusion patient I sympathize for your pain. My surgery was in 1990 with stainless steel plates and screws for a severe spondylolisthesies and fractured L5 lamina du to a fall down a flight of stairs during a California earthquake. Luckily I’ve had no issues with screw movement or plate issues all these years. I was a nurse for 40 years and I didn’t continue with my PT long enough and consistently for my own good. I’m now paying the price at 72. I thought it was more prevalent than what the article I included states. I thought I saw a lot of recovering patients from this when I did home health in California. I presume you’re working with a PT and not treating yourself.
https://mayfieldclinic.com/qa_adjacentsegment.htm

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@msmcecelia

I feel your pain. My discs L2-3, L 3-4 disintegrated and there was traumatic disc extrusion near the spinal cord at L 1-2. Over many years the vertebrae naturally fused so I have had to get 4 steroid injections for pain. Currently space of epidural canal is narrowed and another epidural is not recommended. It has been years of acute flare up events and chronic pain. I take a minimum of Hydromorphone. The bed hardness (I slept on the floor since 2008!) was a big factor in getting sleep. But now the best sleeping can occur partially sitting up. The Pain Clinic Doctor here in Vancouver is going to try a nerve ablation procedure. I talked to Occupational Therapist for the first time yesterday and she stressed mind-body connection for relaxation. I splurged last year and bought a new mobility scooter so my husband and I can get out locally. Car rides are difficult to handle. Relaxation is something I’ve done for years and do have lots to have my mind stimulated. It is torture though and frustrating with limited mobility, but you need to listen to your pain and get bed rest with rotation of ice packs and regular med schedule whenever needed. No guilt! My question is: anyone had success with lumbar nerve ablation?

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I had radio frequency ablation procedure 3 yrs ago. It is done in a series of 3 injections. I did not notice any real or long lasting benefits from this procedure. I went on to have a fusion surgery, which unfortunately, did little to help with my back pain and poor mobility. Hope the procedure is more successful for you. I take a daily 25mg Tramadol which helps with the chronic pain situation.

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@cedarrose

I had radio frequency ablation procedure 3 yrs ago. It is done in a series of 3 injections. I did not notice any real or long lasting benefits from this procedure. I went on to have a fusion surgery, which unfortunately, did little to help with my back pain and poor mobility. Hope the procedure is more successful for you. I take a daily 25mg Tramadol which helps with the chronic pain situation.

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Thanks for your reply and info. Sounds so difficult and painful for you. Also very frustrating when a procedure doesn’t work. Then to have fusion surgery, wow that’s bravery! I take Tylenol and rest during the day. Then middle of the night have a morphine. I was booked for knee replacement but cancelled to avoid aggravating my back. We are in the coastal part of BC and winter weather is annoying in lots of ways. The snow right now is obstructing getting out on the scooter. However it’s sunny! Keeps the spirits up a bit.

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