@elgie17 I literally just did the 24 hour pee test. My husband took it in this morning, not sure how long it will take to get the results. It's interesting to see how everyone had their paraganglioma discovered, mine was only as a result of serious side effects all at once, so bad that I went to ER a month ago and this is where it all started, multiple tests and scans until they found it three days ago in my neck - splaying the carotid artery. So, I am literally at the start of this journey. Thanks for your input though, any thoughts and advice are so appreciated 🙂