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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Brain Tumor | Last Active: Feb 8 4:56pm | Replies (535)
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@colleenyoung

A belated welcome, @djewell823. Thanks for the information and your experience with both UCSD and Mayo Clinic.

What treatment did you have at Mayo Clinic? How are you doing now? Do you return to Mayo for follow-up or follow-up closer to home?

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Replies to "A belated welcome, @djewell823. Thanks for the information and your experience with both UCSD and Mayo..."
djewell823 | @djewell823 | Feb 8 4:56pm

Thanks, Colleen!
I had my 1.7 cm acoustic neuroma removed by the retrosigmoid approach in late May, 2024.
My hearing was partially preserved and no damage to my facial nerve, thankfully. I do have severe headaches, however, which have definitely affected my quality of life. I live 8 hours from Rochester so I see local doctors now, although I message my surgeon with various questions and appreciate hearing back from Nurse Marina.
I had my follow-up MRI at Mayo 3 months after surgery and don’t have to have another one for two more years.
If anyone has figured out a solution to post-surgical headaches I’d be very grateful for the information.

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