Hi kimmykat,
You must find a pain management doctor to prescribe methadone. Methadone was originally created for managing neuropathic pain (long before it was co-opted for other uses and even nefarious purposes). Find a doctor, have him/her start you on low doses, and your life will improve significantly. Reach out if you want. Rob
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
I have been diagnosed by Mayo with peripheral neuropathy. I have foot drop and neuropathy in this foot. I have had lots of tests: MRIs, EMGl, NCS, lab tests. Abnormal findings are EMG, NCS, and Anti-ganglioside antibodies. I have been on this journey for about a year and a half. I will be starting a 6 month course of IVIg to see if it will alleviate my symptoms. Anyone else out there?
I have been diagnosed by Mayo with peripheral neuropathy. I have foot drop and neuropathy in this foot. I have had lots of tests: MRIs, EMGl, NCS, lab tests. Abnormal findings are EMG, NCS, and Anti-ganglioside antibodies. I have been on this journey for about a year and a half. I will be starting a 6 month course of IVIg to see if it will alleviate my symptoms. Anyone else out there?
Hello @evigg208, Welcome to Connect. You mentioned that you have been diagnosed with Multifocal Motor Neuropathy (MMN) in your first post. @franksgirl210 and @artemis1886 have mentioned MMN in other discussions and may also have some thoughts. I thought I would share this video where Dr. Katzberg explains what MMN is, how it affects the body, what symptoms are common, routes of recovery, and what to expect post-diagnosis - https://www.youtube.com/watch?v=bV2YZw-AwME.
Please describe the type of cronic, debilitating pain that you’re talking about. Over the last 3-4 years I’ve had two bouts of debilitating pain in my feet and legs lasting about 2 to 3 months, then vanishing as quickly as it appeared. So I’m waiting for the next shoe to drop. My pain is at its worse when I get up from laying down or sitting and put weight on my right leg. It hurts so much I often cry out. Then it mais very difficult to get around.
I was diagnosed at Mayo Clinic with peripheral neuropathy back in 2012. During most of that time I experienced no pain; just numbness, mostly in my feet and then my fingertips and loss of balance.
I also had spine of fusion surgery in late September, and that seem to exacerbate the pain.
I have been diagnosed by Mayo with peripheral neuropathy. I have foot drop and neuropathy in this foot. I have had lots of tests: MRIs, EMGl, NCS, lab tests. Abnormal findings are EMG, NCS, and Anti-ganglioside antibodies. I have been on this journey for about a year and a half. I will be starting a 6 month course of IVIg to see if it will alleviate my symptoms. Anyone else out there?
I have drop foot. I have a different diagnosis than you causing my drop foot. It started with left foot and then the right foot a few months later. Should you experience a situation where you feel the front of your foot gets "caught" and would stumble forward. at that point, please make certain you get good medical advice. I now wear ankle foot orthotics (AFO's) to prevent tripping. Wish you the best with your 6-month treatment.
Hello @evigg208, Welcome to Connect. You mentioned that you have been diagnosed with Multifocal Motor Neuropathy (MMN) in your first post. @franksgirl210 and @artemis1886 have mentioned MMN in other discussions and may also have some thoughts. I thought I would share this video where Dr. Katzberg explains what MMN is, how it affects the body, what symptoms are common, routes of recovery, and what to expect post-diagnosis - https://www.youtube.com/watch?v=bV2YZw-AwME.
Most difficult symptom is the neuropathy pain. I manage it by taking 1600 mg of gabapentin at one time along with topical lidocaine. Often the nerve pain keeps me awake at night. I will then take 2 extra strength Tylenol.
Hello @evigg208, Welcome to Connect. You mentioned that you have been diagnosed with Multifocal Motor Neuropathy (MMN) in your first post. @franksgirl210 and @artemis1886 have mentioned MMN in other discussions and may also have some thoughts. I thought I would share this video where Dr. Katzberg explains what MMN is, how it affects the body, what symptoms are common, routes of recovery, and what to expect post-diagnosis - https://www.youtube.com/watch?v=bV2YZw-AwME.
Please describe the type of cronic, debilitating pain that you’re talking about. Over the last 3-4 years I’ve had two bouts of debilitating pain in my feet and legs lasting about 2 to 3 months, then vanishing as quickly as it appeared. So I’m waiting for the next shoe to drop. My pain is at its worse when I get up from laying down or sitting and put weight on my right leg. It hurts so much I often cry out. Then it mais very difficult to get around.
I was diagnosed at Mayo Clinic with peripheral neuropathy back in 2012. During most of that time I experienced no pain; just numbness, mostly in my feet and then my fingertips and loss of balance.
I also had spine of fusion surgery in late September, and that seem to exacerbate the pain.
Neuropathy nerve pain. Constant, never ending, especially at night. Take 1600 mg gabapentin at one time along with topical lidocaine. Often, that is not enuf to enable me to fall asleep.
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Thanks for the advice. Not sure if I’m ready for that. I’ll keep it in mind though.
Understand. To clarify, it's only for those experiencing chronic debilitating pain and no end in sight.
I have been dealing with PN for several years. I use thc products for the pain . A salve for my feet and gummies to help me sleep .
I have been diagnosed by Mayo with peripheral neuropathy. I have foot drop and neuropathy in this foot. I have had lots of tests: MRIs, EMGl, NCS, lab tests. Abnormal findings are EMG, NCS, and Anti-ganglioside antibodies. I have been on this journey for about a year and a half. I will be starting a 6 month course of IVIg to see if it will alleviate my symptoms. Anyone else out there?
Hello @evigg208, Welcome to Connect. You mentioned that you have been diagnosed with Multifocal Motor Neuropathy (MMN) in your first post. @franksgirl210 and @artemis1886 have mentioned MMN in other discussions and may also have some thoughts. I thought I would share this video where Dr. Katzberg explains what MMN is, how it affects the body, what symptoms are common, routes of recovery, and what to expect post-diagnosis - https://www.youtube.com/watch?v=bV2YZw-AwME.
You also mentioned you have foot drop along with the neuropathy symptoms. You might find the following discussion started by @domiha helpful:
-- Could AFOs help with balance?? They are helping me!: https://connect.mayoclinic.org/discussion/could-afos-help-with-balance-they-are-helping-me/
If you don't mind sharing, what is most difficult of your symptoms to manage?
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2 ReactionsPlease describe the type of cronic, debilitating pain that you’re talking about. Over the last 3-4 years I’ve had two bouts of debilitating pain in my feet and legs lasting about 2 to 3 months, then vanishing as quickly as it appeared. So I’m waiting for the next shoe to drop. My pain is at its worse when I get up from laying down or sitting and put weight on my right leg. It hurts so much I often cry out. Then it mais very difficult to get around.
I was diagnosed at Mayo Clinic with peripheral neuropathy back in 2012. During most of that time I experienced no pain; just numbness, mostly in my feet and then my fingertips and loss of balance.
I also had spine of fusion surgery in late September, and that seem to exacerbate the pain.
I have drop foot. I have a different diagnosis than you causing my drop foot. It started with left foot and then the right foot a few months later. Should you experience a situation where you feel the front of your foot gets "caught" and would stumble forward. at that point, please make certain you get good medical advice. I now wear ankle foot orthotics (AFO's) to prevent tripping. Wish you the best with your 6-month treatment.
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Like -
Helpful -
Hug
1 ReactionMost difficult symptom is the neuropathy pain. I manage it by taking 1600 mg of gabapentin at one time along with topical lidocaine. Often the nerve pain keeps me awake at night. I will then take 2 extra strength Tylenol.
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Like -
Helpful -
Hug
1 ReactionMost difficult is the neuropathy pain.
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Like -
Helpful -
Hug
1 ReactionNeuropathy nerve pain. Constant, never ending, especially at night. Take 1600 mg gabapentin at one time along with topical lidocaine. Often, that is not enuf to enable me to fall asleep.
-
Like -
Helpful -
Hug
2 Reactions