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Starting the Big 3 - terrified

MAC & Bronchiectasis | Last Active: Feb 10 1:47am | Replies (15)

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@patgreen11

Sue,

This was very helpful to me. I have had mild bronchiectasis for a number of years. No exacerbations, treatments etc.

I had Covid last year and long COVID since.
Coincidental or not I have had a significant change. Lots of coughing, sputum production and significant drop in PFT. I get very short of breath. My pulmonologist here put me on levalbuterol and hypertonic. I do 3 times a day as well as a combo of vest and aerobika. This has helped with breathing.

I saw my pulmonologist the other day and now she wants me to try steroids, go into hospital for two weeks of random IV antibiotics, bronchoscopy. Also prescribed inhaler budesonide and formoterol.

This has me pretty freaked out.my sputum cultures have been rejected. I want to do another. I am uncomfortable with this plan without identifying a bacteria or lack thereof.
I have an appointment at NJH in mid March. What I see is that it is okay to wait a while without a lot of jeopardy in order to gather all the data to create an appropriate treatment plan.

I was panicking thinking maybe I should have the bronchoscopy here, but now it seems I can wait for my appointment there in March.

Am I accurate in this or do I need to do anything now.

I like a watch and wait scenario. I am very drug sensitive. Can not do albuterol or many antibiotics

Thanks

Pat

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Replies to "Sue, This was very helpful to me. I have had mild bronchiectasis for a number of..."

Hello, As @bayarea58 said, there are many reasons to approach treatment with caution.
The three best are that a short wait to see the experts is probably not a big risk, that you may need help dealing with medication sensitivities and that your pulmonologist's approach suggests that she is not expert at dealing with Bronchiectasis-not an indictment as very few docs are.

What would I do? Wait the month while doing airway clearance. Using the new inhaler is up to you. It is the generic version of Symbicort, and contains a corticosteroid, so it may help with inflammation in your lungs. I use it and find it very helpful.

I was diagnosed with the bronchioscope. I would do it again in a heartbeat. It was nothing. I can't give a sputum, so I am glad it is something I can do. My pulmonologist is adamant that I do not take any steroids, even though I know they will help me with my tight chest. I'm not sure of the reason. I need to ask him.

What color is your sputum? Is it clear or green or brown?