That's been my fear all along. I was not as enthusiastic about Watchful Waiting as my drs were, even though they all believe it's small and benign. As the ENT said, "it's not going to get smaller, you're in great health, and you're not going to get younger". (I'm 68; w/b 69 when I see them again in a couple mos. I agreed to putting it on a back burner til Spring 2025 when they simultaneously found 2 tumors on a kidney (which were successfully removed in Oct.)
Now, I've been experiencing pain in my ear and just below my ear non-stop; was intermittent last Aug, and not as painful as it is now. Anxiously awaiting April appt!
@elgie17 please keep me posted w your appts! Where are you doctoring at? I'm going to Mayo Rochester (we live in Idaho).

@elgie17 I haven't yet met with any surgeons as I was just diagnosed three days ago. I am hoping to meet with two different surgeons next week, but hard to know how quickly I can get in. Usually it's 3 months to get an appointment. My doctor has marked urgent and I do think mentioning that it is paraganglioma might help to get in quicker. Where are you having treatment, is your surgeon a specialist in paraganglioma and if so, how did you find them?
Appreciate any advice and information you have on finding them right surgeron.