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Can PMR present in the clavicle too?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 14 6:24am | Replies (15)

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@papas

I always keep in mind that each of us has our own journey. April 2024 apparent GCA attack left eye lost 15% - never medically verified (not unusual) began 48mg Prednisolone . 7/10/24 began self injections Actemra 162mg/.9ml once a week with 15mg Prednisone 10mg AM 5mg PM also began a tape reduction of 1mg/week Prednisone. Between then and now Actemra was temporarily stopped for Covid (1 injection)then a tooth extraction (1injection). Today I am holding at daily 2mg Predisone and the Actemra weekly. Will be meeting with Reumatologist plus Blood work in 3 weeks for next steps. I had minimal side effects with the Actemra, sometimes tired the day after the shot. If you try the Actemra. I wish you good health on your journey.

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Replies to "I always keep in mind that each of us has our own journey. April 2024 apparent..."

Hi! So far my Rheumatologist has only suggested Kevzara, and I’m not ready to use something with so many terrible potential side effects. I was on Methotrexate for 6 months and it didn’t help me at all, to taper down on my steroids. It also had a lot of potential side effects, but Kevzara was far worse and increased cancer risks by 10 percent.
Thank you for your answer❤️

@papas
Thank you for your concern/-best wishes on your PMR journey!