← Return to Burning mouth syndrome (BMS): Is this an autoimmune disease?

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@diannesmcneill

All of my doctors and dentist thought I was dealing with a nerve issue. Trigenial nerve but did not spell that right. I was given amitripline and gabapentin first then changed to pregabalin and several other medicines my doctors tried for nerve damage.I just shared my experience. None of my doctors thought reflux treatment would work. We just tried and it took about 2 months for me to improve. 4 months out now and I am sharing my experience. I don’t ever notice anything coming up into my mouth from esophagus. To me it seems like my esophagus was so damaged by the reflux that the metal taste, overly sensitive smells, burning mouth, tongue, and tooth sensations start at the damaged esophagus from the reflux and that sends the nerve signals to my mouth. My mouth tissues and tongue would swell and just hurt so bad. I hope you find your answers. I went through so much HELL and searched for answers for so many years…I just wanted to make others aware. Look online for Reflux and metal taste in your mouth. Metal taste in your mouth is a symptom of reflux.print out the article and take it to your doctor. I recommend an esophagus scope because when you have reflux you could have Barrett’s. My doctor did not think an esophagus scope would help me at all. Well it helped get my final diagnosis after almost 4 years of searching. Remember that treatment for reflux results can take from a few weeks to a couple of months. Sucralfate liquid 4 times a day with ppi 40 mg twice daily and baclofen 5mg 4 times daily sure gave me results. Good luck!

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Replies to "All of my doctors and dentist thought I was dealing with a nerve issue. Trigenial nerve..."

Your doctor can treat your reflux without a scope but he should get serious about his treatment for you to get results. You might not even see the slightest result for a month. You also have to follow all the eating and drinking guidelines for treating reflux and raise your bed at least 6 inches or get one of those lift pillows sold online. I finally got the left pillow. Beds that raise and lower are good but expensive so I don’t have one. And if you believe in prayer…pray!

I have been reading tonight with lot's of hope. I have had BMS for 5 years, no help anywhere....mine started with a bunion surgery. 2 weeks after. The doctor said they didn't do anything to cause. I even remember asking if the anesthesia was causing this pain.?
It's really awful, no joy in eating.
I am going to talk with my GP soon.
Thank you for sharing your journey. Everyone
Robbie