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DiscussionThe lowest effective dose, how is it defined?
Polymyalgia Rheumatica (PMR) | Last Active: Oct 2 7:26am | Replies (141)Comment receiving replies
Replies to "Start dose was 15mg in May 2023. 10mths ago after reducing to 6.5/6mg I had my..."
Yes, I agree that everyone is different and slow taper is less likely to encounter flares. I started at 10 mg, which is low but worked for me. I am a small woman in otherwise excellent health. The rheumatologist let me choose my taper and I only had two small flares, my back at 1.5 mg and my knee at .5 mg. But I kept to the program and did not go up and they resolved themselves after a few days. I have been prednisone free for a month now with no issues. Fingers crossed!
Thanks Megz for sharing all your knowledge. My experience in PMR kind of mirrors yours. After starting prednisone at 10 mg I can’t seem to get any lower than 7. I have flared twice and the second time I was out 8 weeks on 8 mg. I am increasing tomorrow back up to 8 mg to try to give some relief from the stiffness and pain. My Rheumatologist told me just to stay on the 8 mg for awhile and try to taper later. He has mentioned Kevzara but I want to keep trying prednisone tapering if I could do it correctly. Would you have any recommendations on my taper going forward?
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Thank you, and yes will keep you updated. Just starting a lower dose of the prednisone today for a mth, was 10 now 7.5 (I think I mentioned this ) will keep this dose for another month, and have increased the sulfasalazine to 4 a day , we can only try can’t we. I saw a post re a Dr Megan who has a supplement for people on prednisone, have you heard of this? I’m in Australia so will see if they ship to here 🤔