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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Sarcoma | Last Active: Feb 11 12:25am | Replies (18)

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@susangourdlady

My first tumor became the size of a chicken's egg, It did have tentacles and many more small tumors and then it seemed some of the small tumors coalesced into larger ones. There was a lot of movement of the smaller ones. All physicians thought these were sebaceous cysts and no problem for me-Ha ! & years later I find out what they really were. I am so tired.

Right now I have an appointment (March 6) with a Dr. Alexander Burnett at the University of Arkansas for Medical Sciences /cancer center in Little Rock. But yesterday I met with my hematologist/oncologist (I have Factor V Leiden). She agreed major removal of all tissue in the area was not a good option for me. Major radiation is not a good option either, But chemo may be what I end up doing. My husband (77 yrs old) is getting radiation treatment for cancer in a few weeks, I will wait until he recovers from that before I start my chemo, if chemo is what I do.

Thank you so much for you input. I do so appreciate it.
Susan

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Replies to "My first tumor became the size of a chicken's egg, It did have tentacles and many..."

The mention of Little Rock, Arkansas made me smile. One of the greatest Professional supporters of DFSP Support Groups, Pathologist A/Prof Jerad Gardner was at University of Arkansas Little Rock until just a few years ago. Jerad is now at Geisinger in Danville PA. Wonderful man, a rising superstar of Dermatopathology in Bone and Soft Tissue tumours. I dare say Dr Burnett would probably know him.