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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: Feb 14 10:21am | Replies (81)
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@blessed08

Hello, I was diagnosed in November 2024 of LMS in the peritoneal and had surgery in December. I was told that no chemo or radiation is needed at this time, and will need imaging every 3-months. Can you please share more of your journey?

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Replies to "Hello, I was diagnosed in November 2024 of LMS in the peritoneal and had surgery in..."
jeshaw6801 | @jeshaw6801 | Feb 9 11:47am

Hi blessed 08.
I was diagnosed three weeks after the tumor was removed. It is considered a rLMS ( LMS in retroperitoneum region). It was a shock as I had no symptoms. I too have a watch and wait surveillance
CT scan order. That is every 90 days for two years and then every 180 days for ten years. Got past my first scan with a "ned" !! Next is in March.. We were diagnosed at similar times....did you get your first post op scan? Are you working with a sarcoma center? Did you get genomic testing and receptor site analysis? And finally have you read any good books that deal with living life 90 days at a time ?

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