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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Sarcoma | Last Active: Feb 11 12:25am | Replies (18)

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@colleenyoung

@susangourdlady, I moved your post to this existing discussion in the Sarcoma group:

- FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?
https://connect.mayoclinic.org/discussion/fs-dfsp/
I did this so you can connect with others like @karlman @biceto @lala1989 and others. I'm sorry to hear that none of the margins were clean. Have you had an appointment with the oncologist to learn about next steps?

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Replies to "@susangourdlady, I moved your post to this existing discussion in the Sarcoma group: - FS-DFSP (Fibrosarcomatous..."

I have a March 6th appointment. Yesterday though I met with my hematologist/oncologist for some advice. I see her for Factor V Leiden.

I have my Ph.D. from the University of Illinois. This is a research degree. so I have done extensive research about dermatofibrosarcoma. It turns out that this is caused my the translocation 17;22. This information was just amended a few days ago to my pathology report.

I will update as new information comes along.

thank you for moving me here,

Susan