← Return to Paraganglioma / Carotid Body Tumor Question

Discussion

Paraganglioma / Carotid Body Tumor Question

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (127)
Comment receiving replies
@fas

Hi, I know this is an older post but I have just been diagnosed with paraganglioma and live in the Seattle area. I am at the beginning of this journey and haven't yet spoken with surgeons regarding taking it out immediately, not at all or having radiation. Did you move forward with the proton radiation? Did it reduce the tumor? Who did you work with? If you are willing to share this with me it would be so helpful 🙂
Thanks so much

Jump to this post

Replies to "Hi, I know this is an older post but I have just been diagnosed with paraganglioma..."
elgie17 | @elgie17 | 4 days ago

I also have a paraganglioma - carotid body tumor in the right part of my neck. The surgeon is discussing with the radiologists on the artery involvememt. It looks like its completely encased by the tumor 🙁

VIEW AND REPLY
fas | @fas | 4 days ago

@ristene Hi, I am new to this forum and sent you a reply but I don't think I tagged you! I am curious about the proton radiation, did you move forward with this? If so, what were your results? Would love to hear if you are willing to share.
Thanks

VIEW AND REPLY