← Return to Gap between Tymlos and Reclast Due to Insurance

Discussion
Comment receiving replies
@seelex02

Hi! Thank you @mautaylor for commenting, it's so nice to hear from someone going through the same thing!

I haven't done much research. I consulted my endocrinologist at Cedars Sinai in LA and also Dr. Paul Miller (https://millerbonecenter.com/).

My plan is to check my P1NP and CTX every 3-6 months while on Reclast to make sure I am not losing bone and to have a Dexa in one year.

Just an FYI, but in addition to hydrating before the infusion, Dr. Miller suggested a 30 min as opposed to a 15 min timeframe on the infusion.

I fractured L1 at the gym (hip-hop dancing) so I know I will be on some type of regimen for the rest of my life but I'm pleased with the results from Tymlos, which increased not only my BMD but my TBS. My REMS score for spine is now in the normal range. But I consider this a chronic condition. I know what a fracture feels like and I don't want to experience that again!

I am sorry that we patients have to do so much work to ensure a safe and effective continuum of care, and I really appreciate the support that we give one another! Best wishes!

Jump to this post


Replies to "Hi! Thank you @mautaylor for commenting, it's so nice to hear from someone going through the..."

Hi, @seelex02 I’m curious about the planned interval between your reclast infusions. Is the plan for you to have an infusion once per year, or is the thinking that you may be able to space them out further depending on your bone markers?

I’ve recently seen a study that looked at extending time between doses based on bone markers, and I’ve been curious if this is being considered in practice. I’ll be finishing up Evenity in August so am trying to learn what I can about next steps. I’m 53 and want to make the best decisions I can for decades of management.
https://academic.oup.com/jbmrplus/article/8/7/ziae072/7685663