If you Google neoendrocrine carcinoid tumors and read the neoendrocrine tumors q and a plus right under is the Mayo clinic info. Also, wherever yours originated as that to a Google search...ie; neoendrocrine carcinoid tumors originating in...... my hubs was small intestine. That will pinpoint some symtoms and treatment options due to it starting in your origin. I know you'll be looking at prognosis as well. Realize this cancer is generally slow growing and with treatment, even at stage 4 it is very much treatable for many years. If you'll look at the newest treatment which is Lutethera, that is what my hubs went through and finished up Dec of 2023 with good results. This site is a good place for questions, and comparisons. It truly does make you feel as if you're not doing this by yourself. Folks here have NETS that originated in many different areas, different stages and some with different treatments. All is good to know. I hope the above will help you as you navigate through all of this. Again good luck to you.