I found this post searching for support groups for pseudopheochromocytoma. I first had an episode in 2022, about 35 days from the onset of Covid. My nephrologist told me they were seeing a trend of people presenting to the ER 30 days plus or minus 5 days, with sudden severe hypertensive crisis. He brought up pseudo at the time, after pheo was ruled out. I did well for two years on my medications, with few episodes. Then Covid hit again this past October, and the episodes got more frequent and more severe. I’m now on multiple mediations to control it, but continue to have episodes at least weekly. It is everything you all have said. Terrifying. Debilitating. I am looking for more information and support. I wonder sometimes how I can go on like this, and for how long I can go on like this. It has changed my life.