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Can PMR present in the clavicle too?
Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (9)Comment receiving replies
@lori62yb
Hello Lori,
I don’t know why your doctor would say that PMR doesn’t normally present in that area!?Really, it almost always is in your shoulder area and last time I looked your clavicle is in that general area! I get horrible pain in my shoulder/clavicle area. Is she a rheumatologist?
Anyway, I’m so sorry to hear about your PMR journey// it can be very frustrating, I know. I’m on my 2nd round of PMR and have tapered down to 5 mg prednisone. I have an appointment with my rheumatologist in April (the soonest I could get!). He wants me to try Actemra and I would like to get off prednisone and pain medication so I’m willing to give it a try.
Wishing you the best on this continued journey with PMR.
Replies to "@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present..."
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I always keep in mind that each of us has our own journey. April 2024 apparent GCA attack left eye lost 15% - never medically verified (not unusual) began 48mg Prednisolone . 7/10/24 began self injections Actemra 162mg/.9ml once a week with 15mg Prednisone 10mg AM 5mg PM also began a tape reduction of 1mg/week Prednisone. Between then and now Actemra was temporarily stopped for Covid (1 injection)then a tooth extraction (1injection). Today I am holding at daily 2mg Predisone and the Actemra weekly. Will be meeting with Reumatologist plus Blood work in 3 weeks for next steps. I had minimal side effects with the Actemra, sometimes tired the day after the shot. If you try the Actemra. I wish you good health on your journey.