Connect
← Return to Can PMR present in the clavicle too?
Discussion
Can PMR present in the clavicle too?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 14 6:24am | Replies (15)Comment receiving replies
@lori62yb
Hello Lori,
I don’t know why your doctor would say that PMR doesn’t normally present in that area!?Really, it almost always is in your shoulder area and last time I looked your clavicle is in that general area! I get horrible pain in my shoulder/clavicle area. Is she a rheumatologist?
Anyway, I’m so sorry to hear about your PMR journey// it can be very frustrating, I know. I’m on my 2nd round of PMR and have tapered down to 5 mg prednisone. I have an appointment with my rheumatologist in April (the soonest I could get!). He wants me to try Actemra and I would like to get off prednisone and pain medication so I’m willing to give it a try.
Wishing you the best on this continued journey with PMR.
Replies to "@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present..."
Someone else mentioned Actemara, but it’s not FDA approved, so I doubt my Rheumatologist will let me try it. She’s really wanting me to try Kevzara, to help me taper off steroids, but the increase of getting Cancer isn’t something I’m interested in. It has a lot of other potential side effects as well. I did try methotrexate in 2023, but it didn’t work for me. I was on it 6 months and wasn’t able to go below 5mg and the pain was really bad on 5.
Connect
I always keep in mind that each of us has our own journey. April 2024 apparent GCA attack left eye lost 15% - never medically verified (not unusual) began 48mg Prednisolone . 7/10/24 began self injections Actemra 162mg/.9ml once a week with 15mg Prednisone 10mg AM 5mg PM also began a tape reduction of 1mg/week Prednisone. Between then and now Actemra was temporarily stopped for Covid (1 injection)then a tooth extraction (1injection). Today I am holding at daily 2mg Predisone and the Actemra weekly. Will be meeting with Reumatologist plus Blood work in 3 weeks for next steps. I had minimal side effects with the Actemra, sometimes tired the day after the shot. If you try the Actemra. I wish you good health on your journey.