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Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: 6 days ago | Replies (149)

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@artemis1886

What is the cause of the neuropathy?


Dr Ann Oaklander is a research neurologist out of Boston. I went to see her for answers. She has a lot of lectures online. She has been researching neuropathy since before2015 and her daughter is a research neurologist. Neuropathy is just the beginning what is causing the damage to the nerves. That question drove me crazy. Mine was autoimmune neuropathy.

Have you had the biopsy to see if you have small fiber neuropathy?
Dr Oaklander helped a lot. I had all ready had the emg/nerve conduction testing and the biopsy for small fiber neuropathy. I had listened to all her videos and wrote down my questions for when I saw her. I was on IVIG from age 10-18 every week. My immune system was very low. She also has a list of labs to be done. I will send them to you if you want them. I had to have them done before she would see me.

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Thank you so much for your encouragement. I would sure appreciate your sending of the list of Labs you had to have done. Len and Joan