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DiscussionStarting the Big 3 - terrified
MAC & Bronchiectasis | Last Active: Feb 10 1:47am | Replies (15)Comment receiving replies
Replies to "@doberdoo First, please take a deep breath, and know that your are in good company here!..."
Sue,
This was very helpful to me. I have had mild bronchiectasis for a number of years. No exacerbations, treatments etc.
I had Covid last year and long COVID since.
Coincidental or not I have had a significant change. Lots of coughing, sputum production and significant drop in PFT. I get very short of breath. My pulmonologist here put me on levalbuterol and hypertonic. I do 3 times a day as well as a combo of vest and aerobika. This has helped with breathing.
I saw my pulmonologist the other day and now she wants me to try steroids, go into hospital for two weeks of random IV antibiotics, bronchoscopy. Also prescribed inhaler budesonide and formoterol.
This has me pretty freaked out.my sputum cultures have been rejected. I want to do another. I am uncomfortable with this plan without identifying a bacteria or lack thereof.
I have an appointment at NJH in mid March. What I see is that it is okay to wait a while without a lot of jeopardy in order to gather all the data to create an appropriate treatment plan.
I was panicking thinking maybe I should have the bronchoscopy here, but now it seems I can wait for my appointment there in March.
Am I accurate in this or do I need to do anything now.
I like a watch and wait scenario. I am very drug sensitive. Can not do albuterol or many antibiotics
Thanks
Pat
My lung disease was caught by accident during a visit to the ER, heart related, in Aug 2024 so it has been there and growing for quite some time which leads me to think I am at the danger point. They found nodules and GGOs on a routine chest xray and immediate CT a that time. Had a broncoscope on January 6 and it grew the MAC culture. I have not had Bronchiectasis or COPD. I cannot see a pulmonologist for three weeks.