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Non-diabetic neuropathy

Neuropathy | Last Active: Feb 15 1:37pm | Replies (48)

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@njed

@missbutterfly2be When I went to Mayo in 2020, I did bring up the subject thinking they would obviously have a neuromuscular neurologist on staff. After several days of testing, I was told my symptoms did not indicate the need to see a neuromuscular neurologist. In 2023, I did bring it up again with my neurologist who I see once a year and she stated that I do now show any indications for a referral to a neuromuscular neurologist. Since 2020, my symptoms have not changed that much other than balance is worse than 5 years ago. Numbness is still below the knees. I appreciate your thoughts on this and perhaps your posting will help others. Also, sorry to hear what is going on with your feet. Please stay safe. Ed

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Replies to "@missbutterfly2be When I went to Mayo in 2020, I did bring up the subject thinking they..."

Have you been checked for Charcot Marie Tooth (CMT)? There are many varieties of CMT. Your symptoms are very similar to mine. I’ve been diagnosed with CMT1B, but if you do have CMT, it could easily be another type.