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@jnmy

@lisa3fam I’m just a patient but I was misdiagnosed with GERD until I had the 24 hr PH test.

I had coughing, fatigue, an achy body etc, some shortness of breath while exercising etc and had been diagnosed many years before with chronic non allergic sinusitis and thick mucus.

My lung function tests and oxygen levels were normal - still are thankfully - however infection was left to fester despite asking for a sputum test. I spoke about mucus but doctor said it was nothing. My symptoms could be somatic. 🤨 I was not someone who was at the doctor’s often prior to the onset of symptoms. That continued until I took a photo of my sputum to my provider and then I got an xray. Then after asking twice for the results, I insisted on another x ray or CT scan. Of course I got another xray. Finally after meeting the pulmonologist I got the CT scan and a diagnosis.

My advice - don’t let that happen to you. I have Bronchiectasis with no MAC. I wish I had followed my gut and insisted or got another opinion early on.

There are lots of similar stories on this site. People are just fortunate to have a doctor who takes the time to diagnose. They are out there though! Hope you get a diagnosis soon.

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Replies to "@lisa3fam I’m just a patient but I was misdiagnosed with GERD until I had the 24..."

Thanks for your encouragement! I’m trying to find someone locally for a second opinion.