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New Diagnosis: husband's labs are all indicating NET

Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (38)
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@jocat74

Hello, I was diagnosed a year ago with NET in my left lung. I had surgery and lost my left upper lobe but was considered “cured”. Now that I’ve had time to do some research, I’m concerned the cancer could come back, especially since it was 6.9 cm and atypical. I am in Green Bay and am thinking I should find a doctor who specializes in NET. There are none in GB so could private message me the name of your doctor in Milwaukee?
Julie O’Connell

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Replies to "Hello, I was diagnosed a year ago with NET in my left lung. I had surgery..."
gustavo1975 | @gustavo1975 | Feb 7 11:17am

Hola ,cómo está ? Espero que muy bien . Lamento que haya tenido que pasar por eso. Pero también es una alegría que haya salido todo bien.

Después de la operación quirúrgica, usted no hecho controles periódicos? De 3 o 6 meses ?

Si usted se ha hecho controles de rutina y seguimiento le salen negativos, es un gran indicio. De no haber hecho seguimiento luego de resección quirúrgica le sugiero encarecidamente que se ponga con eso.

Quizás sería conveniente que le preguntes tus dudas a un oncólogo en lo posible experto en NETS.

Te mando un saludo y deseo que estés bien .

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Colleen Young, Connect Director | @colleenyoung | 1 day ago

@jocat74, Julie, if you would like to get a second opinion from Mayo Clinic, you can self-refer here: http://mayocl.in/1mtmR63

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Teresa, Volunteer Mentor | @hopeful33250 | 6 hours ago

Hello @jocat74,

It is always wise to consult with a NET specialist. Mayo Clinic has NET specialists in all three of the locations. Here is a link with appointment information, http://mayocl.in/1mtmR63.

I can understand your concern as I have had three surgeries since 2003 for NETs in the upper digestive tract. It has been frightening every time and I also worry about recurrence. However, over the last 20 years that I have been on this journey with NETs, new treatments have become available and many are living with NETs for a long time. For me, the only treatment I have needed is surgery.

How are you feeling now?

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