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1 cm lung cancer tumor with COPD & emphysema: Anxious

Lung Cancer | Last Active: Feb 15 12:49pm | Replies (91)

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@loulou2023

Amen!,,, Don’t you love doctors who can’t stay in their lane!!!!!
I was having a lot of problems with a high rate and my oncologist chalked it up chemo radiation. after 3 months I said refer to a cardiologist. Maybe it was more than his obvious assumption. They did tests on me::::all good but did start me on med that worked on my heart rate.
Fast forward to now ….problems with shortness of breath. yes I have food copd confirmed with Pft 2 years ago. Anyway,what does my oncologist do?.. Puts me on dexa, saline inhalation for my nebulizer. Does he tell me to go my pulmonologist……nope!,,,
he is a great oncologist……NOT a pulmonologist,,,
I questioned him and he said that most patients want him to treat them for all their comorbidities not just their cancer. I think that’s so wrong. What everis wrong is the patient they should see a doctor for whatever is wrong with him .I think it’s really important to separate out your different issues even if your doctor seems to think that he wants to take them all on as ifhe is a trained in all these other specialties. Become a soapbox issue for me because I’m also suffering right now they told me from Malnourishment, so what do they do? They send in someone and tells me I should go home and make myself a smoothie do things like that? Absolutely no help no menu no no clue what to cook how to put on weight. Losing muscle mass no help with that. I came home in the more I thought about it is piss me off. I have an appointment with my regular GP who I’ve had for years on Wednesday. I need to get with the dietitian. I need to get with PT and start doing some kind of therapy to build up his muscle before I lose more. Mention any of that to me nope. Scary thing is I’m in EmoryCancer Center, Winship Cancer Center in Atlanta.

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Replies to "Amen!,,, Don’t you love doctors who can’t stay in their lane!!!!! I was having a lot..."

Hi Lou:
Makes me sad to know you having these dangerous issues. I just wrote to Helen about her frustrations. The system and the people in it are overloaded. I had my stress test yesterday and was there for 4 hours. Some people there recognized me and we spoke. One nurse told me she hopes she never has to be a patient.

It is all too much for the system. Things fall through the cracks. It is so random.

I have no advice only empathy for a difficult situation. Squeaky wheel gets the grease seems to be the patient option. I hate being that way and to be honest I don't squeak. I just go along living today which is the only day.
I know I am of no help to you. I hope with all my heart that you get what you need.

Frank

You sound like me. Wait and see on new nodule in right lung with ground glass opacity CT scan in April but meanwhile still fighting off 3 weeks with flu and a loss of 5 lbs and no recommendations but "eat" more on how to get it back. I am/was a Zumba instructor. Good luck to you LouLou and send any new suggestions that may recently have been magic.