Fenbendazole: How to respond when people recommend unproven treatment?

@survivor5280
I went to UFHPTI (University of Florida Health Proton Therapy Institute) for my proton radiation prostate treatments. Mayo Jacksonville did not offer proton only photon but are building a new cancer center that will offer proton radiation in 2026

UFHPTI is a huge facility built back in 2006 and just went through complete update with all gantries (five of them) to latest proton equipment. It is like being in Star Wars.

They have 5 gantries. The majority of patients are children. The hallway has 5 gantries, changing rooms, bathrooms, on one side and the other side are special holding and pre/post treatment rooms for children.

I was told so many children there as they try to use proton radiation to limit the amount of radiation damage to surrounding organs and tissues as children live so much longer than adults and chances from secondary cancers from radiation would be much higher.

All those shaved heads I saw every day really depressed me but then I thought they are getting outstanding care from a medical facility that has been doing proton radiation since 2006 and has patients from almost every state and hundreds of countries coming there.

The short answer...

Thanx...

Then, follow the science, NCCN, AUA guidelines or read articles such as this - https://www.urotoday.com/video-lectures/nccn-2024/video/mediaitem/4275-2024-nccn-prostate-cancer-guidelines-updates-in-m1-cspc-treatment-rashid-sayyid-zachary-klaassen.html

Discuss the science with your medical team as it relates to your clinical data.

Based on the science, the guidance from your medical team, make an informed decision. I like to call that the "art" of medicine, applying the science in concert with your medical team to your clinical data.

I think clinical trials are fair game for discussion with your medical team as they may not have changed the guidelines but certainly warrant discussion.

That being said, anecdotal clinical trials that have not even gone through trials with humans, are not something to bring up with one's medical team in my experience.

My medical team is more than open to discuss clinical trials such as PATCH, Embark, STAMPEDE.

Your credibility is a factor in how your medical team listens to you, I would consider not damaging that invaluable asset by bringing things like this into the discussion.

Also, tine is limited with our medical team during consults, how do you want to spend it!?

Kevin